It is 9:42pm and Beck and I got home an hour ago from a day in the clinic in Atlanta. We left at 11:00 wth Becks dad driving and made it for the 1:00 appt. Beck refused to get the EMLA cream on his port site (says it hurts and darned if his sister also hated it) so we tried the cold spray with great success. He had blood taken to check cbs, chemistries and also to see if he has active CMV or EBV which can affect liver levels and we will have results back tomorrow thought the concern of those is low but being done to be thorough. Beck was weighed and has gone up two and a half pounds since last month as well as an inch. This is probably a large portion of why his legs were hurting last week as he is now running much more normally and has no pain complaints. Dr B checked Beck out and is impressed with his silly and healthy self. Becks liver numbers have dropped down within the normal range for a child on treatment, praise the Lord. The team has decided to hold his bactrim which is an anti pneumonia antibiotic that is heavy duty and given every weekend while in treatment…they have switched this oral liquid for a once monthly iv infusion. There is a very slight decrease in its effectiveness against pneumonia but they feel it is too hard on his liver functions and that is more of an immediate concern.
Beck finished his chemo and pentamidine around 5:00 and we elected to grab dinner versus sitting in traffic for 3 hours. I fully anticipated him zonking out on the way home but he happily colored and chatted with us. After a quick stop to pick up his decadron from the pharmacy we made it home. I have him a quick bath because it was a day full of people and germs and I tucked him into my bed where he fell asleep before I finished praying.
These sorts of days are long and exhausting. The anticipation, the waiting, the entertaining, the answers, the traffic…it all roll into one long day. But today I am thankful for a day with results that my heart is encouraged by. That I see the faithfulness of the Lord from last week and those fears to today with its weariness and yet, even happiness. I’m thankful that Becks dad drove us, that the hospital has a Starbucks’s, that Beck fully appreciated cream cheese and crab rolls and my curry at The Tin Drum for dinner and that my Linley was loved on well by my mom. And that all concerns from last week are gone and better. I am aware that the Lord often has gripped me in fear to strengthen my trust of Him; how weak I feel when I stand in front of uncertain circumstances and my own shortcomings but how kind and steadfast is He as he builds up my knowledge of His character each time. He will not allow me to remain neutral in my concept of needing a Savior.
Becks next monthly appt will be the week of Labor Day and it will be a sedation/spinal tap. This is when chemo is given but also they look at his bone marrow to assure them and us that Becks body is continuing to remain leukemia free. Until then he is back on nightly oral 6mp chemo, Wednesday methotrexate pills and beginning tonight is ten doses of decadron steroids. Choosing to be thankful that these medications are available and effective. And always thankful for each of you who love us so well.